Wednesday, July 8, 2009

For some reason, I still have a mental block. I think that if I don't have a picture ( new) of Ally, I can't put up a post. Well tuh duh! The light bulb just clicked on! I can type without pictures. Ally 's CAT scan came back fine as did her blood work. She was off balance for about 3 weeks, but then it just resolved. They say it was not her ears, but I don't believe them! I think it was an inner ear infection, which you have to have an MRI to detect. We never did that.

One good thing is that we did get a genetic counseling appt to have her checked again for a disorder. We still get asked "Does she have genetic disorder?" all the time. I am tired of answering IDK. I have found one that she fits to a "t' but that is the only one that they say they ruled out definately. Well, upon further research, I found otu that about 5% of the population that has the disorder get negative FISH testing! As far as I know that is the only genetic test they ran. Well, at least we will have answers.

I was sitting thinking how lucky I am to have a child that is not really interested in putting everything in her mouth( knock on wood). But then it occured to me that she has a fascination with running/walking with long sticks, or anything hard in her hands. Which is worse.....?Finally, do you know what a beautiful song "Twinkle, Twinkle Little Star" is, especially when it is coming out of your little girl's mouth????

1 comment:

Unknown said...

Hey, I'm so sorry I never called you back!!!! I'm a bad friend, forgive me! We were right in the middle of our move, which was really stressful! But we're here now and I'll call you soon, maybe this afternoon when C-man wakes up. What's going on with Ally? I'd LOVE to see Jordan. I've got something to tell you too:)

Love,
Kari