Yeah, I know it has been over ayer since i posted anything. new jobs and new medical problems and well....i just forgot. Here's the scoop: Ally is almost 31/2 now and is doing really well she is finally starting to grow since her last surgery. 2 inches since december 3rd I might ass, and that was at last count 3 weeks ago. What last surgery you say? OH BOY, did I not tell you? Ally had a "mass" on her spinal cord. it was sometimes referred to as a tumor, and sometimes as a mass, and sometimes as a cyst. I didn't care what it was it was not supposed to be there! After several invasive tests, we found out that it was affecting some of her organ functioning and had it removed. We found it in september, all tests were done by November, and the surgery was Dec. 3rd. what a whirlwind. And oh yeah,,, she also has sacral hypoplasia, (don't ask), and here is the kicker... a Brain Tumor. Yep, this little one has a brain tumor smack dab in the middle of her brain on the hypothalamus. They do not thing it is cancerous so we are just watching it for now. nonetheless, since her last surgery we have seen major improvements in many areas...except sleep and only child syndrome...
